Can-GARD/CCMG – The Leading Strand Series

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This series is for genetics health professionals led by the Canadian College of Medical Genetics and co-sponsored by Can-GARD. Speakers will be translation-focused researchers, clinicians and innovators.  The series will help attendees anticipate, access, and apply new approaches and technologies for patient care.



Title: Novel Outcome Measures For Genomic Medicine

This presentation will describe a framework for outcome measurement in genomic medicine, highlighting the complexities associated with defining the notion of value in this context. Since the value of genomic testing depends upon perspective and clinical context, this presentation will summarize ongoing work to develop and validate novel measures of utility from clinician and patient perspectives.

Learning objectives:

  • Describe a multi-dimensional framework for outcome measurement in genomic medicine.
  • Understand a methodological approach for developing and validating outcome measures.
  • Consider the application of novel outcome measures for a range of clinical genetics settings.

Speaker: Dr. Robin Hayeems


Dr. Robin Hayeems is a Senior Scientist in Child Health Evaluative Sciences (CHES) at The Hospital for Sick Children (SickKids) and an Associate Professor in the Institute of Health Policy, Management and Evaluation (IHPME) at the University of Toronto. She is trained in genetic counselling (ScM, Johns Hopkins University), public health and bioethics (PhD, University of Toronto), health policy research (University of Toronto, IHPME Postdoctoral Fellowship) and health services research (University of Toronto, Institute for Clinical and Evaluative Sciences Postdoctoral Fellowship).Using applied health services and policy research methods, Robin’s work focuses on the delivery, evaluation, and governance of genomic screening and diagnostic tools in the prenatal, newborn, and early childhood periods. As a member of several provincial advisory committees, her work informs and is informed by policy development in this area. Robin holds a Canada Research Chair (Tier 2) in Genomics and Health Policy.

Friday, September 29, 2023
Friday, October 27, 2023 – cancelled
Friday, November 24, 2023
Friday, December 15, 2023 @ 12:30pm – 1:30pm ET
Friday, January 26, 2024
Friday, February 23, 2024
Friday, March 22, 2024
Friday, April 26, 2024
Friday, May 31, 2024
Friday, June 28, 2024

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